How a mother’s ‘common cold’ turned out to be a rare virus that caused her to go BLIND and left her fearing she’d never see her three-year-old son again
- Desiree Taylor caught a virus before going completely blind in July this year
- She lost both sight in her eyes for a whole month and was unable to leave home
- She was told to take a steroid otherwise she would lose her sight permanently
- Six weeks after she went blind Ms Taylor regained 80 per cent of her vision back
A mother feared she would never see her two-year-old son again after contracting a rare virus and going completely blind in both eyes for an entire month.
Desiree Taylor, 34, a life coach and motivational speaker in Sydney, said she was suffering what she thought was a common cold at the start of July when the sight in her left eye went.
But two weeks later, the sight in her right eye was gone as well, forcing her to spend the next month living in darkness – all while trying to care for her son Phoenix.
Ms Taylor was told by doctors she was at risk of losing her sight forever but after being blind for four weeks, Ms Taylor regained 80 per cent of her vision back.
Desiree Taylor, (pictured with two-year-old son Phoenix) went completely blind after contracting a virus
‘I got the head cold, I was getting really sharp pains in my head and my eyes and then I woke up one morning and I thought: “I can’t see out of my left eye”,’ Ms Taylor told Daily Mail Australia.
Ms Taylor, who once represented New South Wales in hockey, said her career ended permanently when she was diagnosed with chronic fatigue after competing in a tournament in 2011.
She said having chronic fatigue had left lasting impacts on her body and made her susceptible to falling ill.
‘It took four years to feel good after I had chronic fatigue. My body was kind of already struck down once,’ she said.
Ms Taylor said she had the support of her partner Ben and mother after the virus effected her optic nerve causing her to go completely blind for four weeks
How Desiree Taylor lost her eyesight
Desiree Taylor contracted a virus which she thought was a common cold in July.
She began to lose her sight in her left eye and two weeks later lost vision in her right.
She spent the next four weeks in total darkness.
The virus had effected her optic nerve and she was diagnosed with optic neuritis.
The illness is caused by inflammation of the optic nerve and can lead to pain and temporary loss of vision.
Ms Taylor took the steroid prednisone which is used to suppress immune system and decrease inflammation
After four weeks of having no vision, she regained 80 per cent of her sight back
With the birth of her baby, Ms Taylor said she had ‘everything sucked out’ of her.
She returned to playing hockey this April after six years out of the game but soon found she had taken on too much.
‘It was too much stress for my body to take. I’m my own worst enemy, I was getting frustrated I couldn’t do things I used to,’ she said.
It wasn’t until her partner Ben came down with a virus which passed onto her that Ms Taylor felt something might be wrong.
After losing her sight in her left eye she rushed to see a neurologist.
‘They said you’re going to have to get lumbar punctures, spinal tap fluids. I was diagnosed with optic neuritis, but I held off stupidly thinking it would get better,’ she said.
It wasn’t long before she lost the vision in her right eye and she then entered into a world of darkness.
‘If you were standing in front of me I wouldn’t be able to see any details of your face or who you were,’ she said.
‘I literally couldn’t see my phone, couldn’t see the TV or make out details of someone’s face.’
Ms Taylor (pictured with her partner Ben) was unable to see her phone or a screen and spent a month listening to podcasts
Ms Taylor said she spent the month in the dark listening to podcasts and things that would help her feel better.
‘All I really felt was fear,’ she said.
Luckily, Ms Taylor said she had the support of her partner and mother, only leaving the home to visit her parents’ house who live in the same suburb.
While she tried to stay positive, Ms Taylor admitted there were times when she would spend the whole day crying, as fears loomed in she would never be able to see her son again.
‘I didn’t know if I’d ever be able to see his little face again. I would cry a lot, but I would talk myself back up. You can’t heal when you’re in a depressed state. I thought it’s not going to be the end of my life,’ Ms Taylor said.
‘I did cry and break down. I was like what the f**k, I was so stupid for putting myself in that position.’
The motivational speaker from Sydney said she spent days crying as she feared she would never regain her sight
During the month without her sight, Ms Taylor’s eyes were inflamed and pointed in different directions.
Her two-year-old son Phoenix also had to get used to not relying on his mum.
‘It was a big adjustment for him, he would bang on the door for mum so I had to lock the door,’ she said.
‘One part that broke my heart was one morning I was crying and crying when my right eye went. When my mum picked him up in the afternoon, he said mummy was crying this morning because her eyes are hurting I think.’
Ms Taylor said she didn’t believe modern medicine was always the right treatment and often deterred from it.
But after hearing she may lose her sight forever if she didn’t have the steroid, prednisone, she decided to take it.
‘I was initially quite torn and thought I wasn’t going to take (the steroids) until it was quite bad, and then I thought “yeah I should take it”,’ she said.
On returning to the specialist, Ms Taylor was diagnosed with neuromyelitis optica, a branch off the debilitating disease multiple sclerosis.
‘It was scary because the worst case is I could also be wheelchair bound or if it gets worse I could go blind or paralysed,’ she said.
Ms Taylor has now regained 80 per cent of her sight back and has taken a break from her work as a life coach.
She said she is hoping to start work again in March but will spend the summer with her son and partner.
‘I felt like my eyesight went because I couldn’t see what was right in front of me,’ she said.
‘Now I’m feeling back to normal, I don’t want to push myself any further.’
After spending a month in darkness, Ms Taylor finally regained 80 per cent of her eyesight back and plans to spend the summer with her son Phoenix
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